Saturday, July 11, 2009

Overnight Trip

Well, our overnight trip was a success. He slept well for mama and papa. I got no phone calls in the middle of the night. They did give him all his medicines. Maybe now they are starting to see what I meant by it needs to be done. So far so good. Unfortunately, they were home by 10am. Oh, well. I had some alone time and it's time for our routines to get back together. I'm off to check meds for this morning.

Friday, July 10, 2009


Today Naythan is doing most of his medicines very well. I'm tired and feeling sick. I need to keep up with the meds but he's so just active some days. He's going for an over night stay with the grandparents. I've fought tooth and nail for them to understand that his meds can't be an oops I forgot moment. He needs them when they are due. I'm sending a list of what needs to be given when. Hopefully they'll stick to it! I'll post pics of it later!

Monday, July 6, 2009

Find a CURE for CF

Watch this and you'll see what a lot of us deal with as parents or as children/adults and CF.

Sunday, July 5, 2009

Today's Proud Moment

Today's Proud Moment: After dinner tonight, Naythan got up from playing. He came over to me and said, "Mom it's time to do my car." I took out his nebulizer, put it together, and he did his breathing treatment. Showing off to everyone how good he does. He was so proud he did it all on his own. He takes breaks if he needs to. He turns it on, does the whole treatment and is amazing. After we were all done, he got right back up and went back to play. Just like he does it every day. He's getting so much older right before my eyes.

Saturday, July 4, 2009

Naythan's New Nebulizer

Naythan has a new nebulizer. I found out that they made ones in the shape of a car. I got a cool yellow one for him. They do make it in pink too! He's actually doing his Pulmozyne on his own now. He controls it all and does it on a regular basis. I'm so happy and I've attached pictures of what it looks like so you can all get a chance to see it, and maybe get one for your little CFer.

Naythan and the Doctor

Naythan went to the doctor on Thursday, we're having to redo his lead test. He tested a little high and they want to make sure it's correct before we figure out what's causing it. Other than that, we did a height and weight on him too. WE GAINED 2 WHOLE POUNDS! That's a big thing for him. He is now 39 lbs and 40 1/2 inches tall. He's only 4 inches shorter than Lita, his 6 yr old sister. We're doing amazing now! If only we can gain about another 6 lbs.